Managing life with complex and rare conditions — sometimes requiring life-long treatments — can be challenging for both patients and their caregivers.
An estimated 20,000 people in the US are living with hemophiliahttps://www.hemophiliafed.org/home/understanding-bleeding-disorders/what-is-hemophilia/, a rare, genetic bleeding disorder where those affected have low levels of a blood protein involved in the clotting process, sometimes causing spontaneous bleedshttps://www.cdc.gov/ncbddd/hemophilia/facts.html.
Eric Drake is one of those people, and he shared how CVS Specialty’s patient representatives have supported him and made his experience better.
“My representatives have always been there when I needed them, whether it’s helping find assistance paying for my medications or insurance carriers when I was without coverage,” Eric said.
While symptoms vary by individual, Eric has been prone to joint bleeds, which meant undergoing urgent episodic treatment, which impacted his quality of life. He explained that the patient representative he’s worked with for over 10 years, Pat Morgan, introduced him to prophylactic therapy — intended to prevent bleeding episodes before they occur.
“She got the conversation started. I had never heard of preventive injections. I talked to my doctor and got going on them,” Eric explained. “Prophylactic therapy has allowed me to stay more active.”
Pat is one of over 30 CVS Specialty advocates dedicated to hemophilia and related disorders. These colleagues support patients across the country, connecting the dots throughout what can be a complex journey.
“We visit our patients, connect them with resources including our own nurse educators, and work across internal teams to get their questions answered,” Pat explained.
“All of us have a passion for what we do — it’s not just me. I want to make that clear,” Pat said of her colleagues, including fellow patient advocate Brittney Deloach.
“We reach out to patients proactively to help keep a pulse on their individual situations,” Brittney said, explaining that they point patients in the direction of resources they may not even be aware of.